I guess that it is time for me to blog about July 30th.

The scariest, saddest, most traumatic day I have ever had.

At 7AM Lennyn woke up.

As I propped her up on a pillow, her arms went straight up,

stiff as a board and her eyes looked glazed over.

About 30 seconds later, it happened again.

Colton was getting ready to leave for a conference.

I called him upstairs and told him I was heading to the E.R.

I was more afraid because this same thing had happened 2 weeks prior.

As I was changing her clothes I layed her on her side and it happened again.

Both arms straight out, stiff as a board. I was freaking out.

We got to McKay Dee at 7:45 and they immediately took us back.

They hooked her up to so many machines.

They gave her a catheter, ekg, mri, xray and took her blood.

I had Harper with me which made it even more sad.

She kept saying "please stop hurting my baby. Please STOP!" :(

All of the tests came back normal which meant if they were seizures they

were neurological opposed to an imbalance in her body.

The E.R doctor came in told me that they were sending us straight to the

Primary Childrens Emergency Department because he was worried 

that she might have something called "infantile spasms"

My heart sank because I had heard about those. 

They were seizures in infants which stopped their progression.

About one third of those who had these didn't live till the age of 5.

I was a wreck. I honestly don't even remember driving to Primarys.

I dropped Harper off with grandma and Colton left his conference to meet me.

Again, we were immediately rushed back once we arrived.

They decided that we needed to give her an EEG.

This would see if her brain waves were normal.

The neurologist told us that 95% of the time babies with

infantile spasms will show the pattern within minutes of the EEG.

We got her awake, asleep, laughing and crying.

And then they did 5 minutes of strobe lighting.

(Apparently that can bring on epilepsy episodes)

The whole process was about 45 minutes. Maybe an hour.

After what seemed like forever we were finally given the results.

Her EEG was 100% normal. No abnormal patterns whatsoever.

He gave us two possibilities of what it could be.

1 - an ALTE (Apparent Life Threatening Event) Which is basically when your child does something that is strange and looks dangerous enough to warrant an emergent visit but it is not harming them in any other way. 

2 - The most likely cause, and what they diagnosed her with. Sandifer Syndrome. Sandifer Syndrome is when an infant has such bad reflux that their body goes into shock because it cannot handle how much pain they are in. When the acid comes up their throats their body arches or distorts because they physically do not know what to do to rid themselves of that feeling.

It is hard not knowing what exactly she has. But I do feel so much better knowing that her neurologist does NOT think it has anything to do with seizures. 

It has now been over three weeks and although she hasn't had any more of those severe episodes I have noticed how she gets rigid when she hasn't been burped well.

I am just so grateful that it is over.

And that my sweet girl is healthy.